Consultation Hub

• Reduce the current waiting list for assessment and treatment for ADHD receive a timely service
• Streamline the process for ADHD diagnosis and treatment
• Improve information on ADHD services for children, young people and families

• Recruited a temporary consultant Paediatrician to provide short term support (6 month post) who will provide extra ADHD clinics.
• Stockport FT has been providing some additional clinics and waiting times have improved.
• A new ADHD patient information leaflet has been drafted. This has been shared with parents groups who have commented on it. We aim to finalise the leaflet in January 2020.

Stockport Clinical Commissioning Group held an FASD Awareness workshop on 5^th February 2020 with the aims to raise awareness of FASD and to identify how parents and health and social care professionals would like the offer for the prevention, pregnancy, assessment, diagnosis and for FASD in Stockport.

Stockport midwives trained to administer LARC should be promoted and we should train our midwives to have the “are you drinking alcohol “conversations?".

Lots of different patient groups are enabling the patient voice to be heard.

Miss-diagnosis  is very common and a recent freedom of information request stated that Stockport had no children with a diagnosis of FASD. Early diagnosis is vital to get the correct support in place.

Future issues for children with FASD include; Drug and alcohol misuse, Youth Offending/Penal

Current issues are;Accessing services in the right area, Lack of knowledge by professionals, Incorrect assessments, Community in do not understand, Various secondary illnesses.

Conditional Issues;

Confabulation = Tendency to fabricate the truth; mixing films/stories with their actual life and links with impulsivity

82% anxious about the future there will also be the parents who will be anxious and access mental health services

89% of parents who have a child with FASD have reported they are very stressed

Education and transition to adulthood as reduced mental health age, 18years olds are functioning as a 9 year old

A priority for parents was professionals who know about FASD

Most children are diagnosed with attachment disorder prior to a FASD diagnosis.

Adoptive parents need training in FASD.

Children with FASD are not affected any differently to trauma than other children.

Educational Phycologists are very important and should be involved inEducation Health and Care Plans (EHCPs) and their support.

Dr Barrett informed that there is a possibility of a FASD pathway and that work is ongoing to drive down waiting times for ASD and ADHD pathways.

It was thought that FASD was not mentioned in the NHS Long Term plan however, there will be an FASD NICE guidance out later this year.

FASD NICE guidelines are currently being written and until these have been agreed pathway work cannot start.

To improve access to the assessment and diagnosis pathway for ASD for 5 ­ 16 year olds and improve timeliness of assessment and to redesign the 5­16 years ASD assessment and diagnostic pathway in line with the Pennine Care 7 stage model

• Improve access to assessment and diagnosis pathway for ASD and improve the timeliness of the process
• Improved information for families whilst their children are waiting for assessment and treatment ­ December 2019

To improve access to the assessment and diagnosis pathway for ASD for 5 ­ 16 year olds and improve timeliness of assessment and to redesign the 5­16 years ASD assessment and diagnostic pathway in line with the Pennine Care 7 stage model