Fetal Alcohol Spectrum Disorders

Closed 5 Feb 2020

Opened 5 Feb 2020

Feedback Updated 17 Jul 2020

We Asked

Stockport Clinical Commissioning Group held an FASD Awareness workshop on 5th February 2020 with the aims to raise awareness of FASD and to identify how parents and health and social care professionals would like the offer for the prevention, pregnancy, assessment, diagnosis and for FASD in Stockport.

You Said

 

Stockport midwives trained to administer LARC should be promoted and we should train our midwives to have the “are you drinking alcohol “conversations?".

Lots of different patient groups are enabling the patient voice to be heard.

Miss-diagnosis  is very common and a recent freedom of information request stated that Stockport had no children with a diagnosis of FASD. Early diagnosis is vital to get the correct support in place.

Future issues for children with FASD include; Drug and alcohol misuse, Youth Offending/Penal

Current issues are;Accessing services in the right area, Lack of knowledge by professionals, Incorrect assessments, Community in do not understand, Various secondary illnesses.

Conditional Issues;

Confabulation = Tendency to fabricate the truth; mixing films/stories with their actual life and links with impulsivity

82% anxious about the future there will also be the parents who will be anxious and access mental health services

89% of parents who have a child with FASD have reported they are very stressed

Education and transition to adulthood as reduced mental health age, 18years olds are functioning as a 9 year old

A priority for parents was professionals who know about FASD

Most children are diagnosed with attachment disorder prior to a FASD diagnosis.

Adoptive parents need training in FASD.

Children with FASD are not affected any differently to trauma than other children.

Educational Phycologists are very important and should be involved inEducation Health and Care Plans (EHCPs) and their support.

Dr Barrett informed that there is a possibility of a FASD pathway and that work is ongoing to drive down waiting times for ASD and ADHD pathways.

It was thought that FASD was not mentioned in the NHS Long Term plan however, there will be an FASD NICE guidance out later this year.

We Did

FASD NICE guidelines are currently being written and until these have been agreed pathway work cannot start.

Overview

Fetal Alcohol Spectrum Disorders Workshop

Why We Are Consulting

Stockport Clinical Commissioning Group held an FASD Awareness workshop on 5th February 2020 with the aims to raise awareness of FASD and to identify how parents and health and social care professionals would like the offer for the prevention, pregnancy, assessment, diagnosis and for FASD in Stockport.

What Happens Next

FASD NICE guidelines are currently being written and until these have been agreed pathway work cannot start.

Areas

  • All Areas

Audiences

  • Commissioner
  • Pennine Care Staff
  • Health & Care Proivders
  • Physiotherapist

Interests

  • Children's Health