We Asked, You Said, We Did

Below are some of the issues we have recently consulted on and their outcomes.

We asked

To redesign the 516 year’s assessment and treatment service for ADHD and ensure it is able to meet need / prevalence and to develop a plan to ensure that those currently waiting for assessment and treatment receive a timely service.

You said

  • Reduce the current waiting list for assessment and treatment for ADHD receive a timely service
  • Streamline the process for ADHD diagnosis and treatment
  • Improve information on ADHD services for children, young people and families

We did

  • Recruited a temporary consultant Paediatrician to provide short term support (6 month post) who will provide extra ADHD clinics.
  • Stockport FT has been providing some additional clinics and waiting times have improved.
  • A new ADHD patient information leaflet has been drafted. This has been shared with parents groups who have commented on it. We aim to finalise the leaflet in January 2020.

We asked

Stockport Clinical Commissioning Group held an FASD Awareness workshop on 5th February 2020 with the aims to raise awareness of FASD and to identify how parents and health and social care professionals would like the offer for the prevention, pregnancy, assessment, diagnosis and for FASD in Stockport.

You said

 

Stockport midwives trained to administer LARC should be promoted and we should train our midwives to have the “are you drinking alcohol “conversations?".

Lots of different patient groups are enabling the patient voice to be heard.

Miss-diagnosis  is very common and a recent freedom of information request stated that Stockport had no children with a diagnosis of FASD. Early diagnosis is vital to get the correct support in place.

Future issues for children with FASD include; Drug and alcohol misuse, Youth Offending/Penal

Current issues are;Accessing services in the right area, Lack of knowledge by professionals, Incorrect assessments, Community in do not understand, Various secondary illnesses.

Conditional Issues;

Confabulation = Tendency to fabricate the truth; mixing films/stories with their actual life and links with impulsivity

82% anxious about the future there will also be the parents who will be anxious and access mental health services

89% of parents who have a child with FASD have reported they are very stressed

Education and transition to adulthood as reduced mental health age, 18years olds are functioning as a 9 year old

A priority for parents was professionals who know about FASD

Most children are diagnosed with attachment disorder prior to a FASD diagnosis.

Adoptive parents need training in FASD.

Children with FASD are not affected any differently to trauma than other children.

Educational Phycologists are very important and should be involved inEducation Health and Care Plans (EHCPs) and their support.

Dr Barrett informed that there is a possibility of a FASD pathway and that work is ongoing to drive down waiting times for ASD and ADHD pathways.

It was thought that FASD was not mentioned in the NHS Long Term plan however, there will be an FASD NICE guidance out later this year.

We did

FASD NICE guidelines are currently being written and until these have been agreed pathway work cannot start.

We asked

To improve access to the assessment and diagnosis pathway for ASD for 5 ­ 16 year olds and improve timeliness of assessment and to redesign the 5­16 years ASD assessment and diagnostic pathway in line with the Pennine Care 7 stage model

You said

  • Improve access to assessment and diagnosis pathway for ASD and improve the timeliness of the process
  • Improved information for families whilst their children are waiting for assessment and treatment ­ December 2019

We did

To improve access to the assessment and diagnosis pathway for ASD for 5 ­ 16 year olds and improve timeliness of assessment and to redesign the 5­16 years ASD assessment and diagnostic pathway in line with the Pennine Care 7 stage model

We asked

To improve access to the assessment and diagnosis pathway for ASD for 5 16 year olds and improve timeliness of assessment and to redesign the 516 years ASD assessment and diagnostic pathway in line with the Pennine Care 7 stage model

You said

  • Improve access to assessment and diagnosis pathway for ASD and improve the timeliness of the process
  • Improved information for families whilst their children are waiting for assessment and treatment December 2019

We did

The CCG has developed a performance framework in relation to the SEND commissioning programmes it is leading on. Baselines and trajectories in relation to the ASD assessment and diagnosis pathway have been clarified.

The plan has now been approved and is being mobilised.

Re designed the ASDAT patient information Leaflet

We asked

To agree and develop a joint approach to commissioning of therapy services for children and young people aged 0 ­ 25 and to develop a joint commissioning plan to improve access to therapy services, address the deficits in children's therapy services and improve post 16 pathways.

You said

  • Improve access to children’s therapy services – achievement of NHS 18 week referral to treatment standard
  • Improve access to therapy services for young people post 16
  • Improved information for families whilst their children are waiting for assessment and treatment

We did

  • The CCG has approved a short term commissioning plan for improving access and waiting times for Speech and Language Therapy. The likely start date is March or April 2020.
  • The CCG has now approved a short term plan to recruit 3 SALT therapists for a 6 month period to meet the needs of those on the waiting list and establish a sustainable position
  • The CCG has progressed a rapid review of the OT service and made recommendations which have been shared with the senior leadership team in the FTs children's service.
  • The CCG has employed a consultant to support work on children's commissioning. They have done a rapid review of the service and have made recommendations.

We asked

To agree and develop a joint approach to commissioning of therapy services for children and young people aged 0 ­ 25 and to develop a joint commissioning plan to improve access to therapy services, address the deficits in children's therapy services and improve post 16 pathways.

You said

  • Improve access to children’s therapy services – achievement of NHS 18 week referral to treatment standard
  • Improve access to therapy services for young people post 16
  • Improved information for families whilst their children are waiting for assessment and treatment

We did

  • The CCG has approved a short term commissioning plan for improving access and waiting times for Speech and Language Therapy. The likely start date is March or April 2020.
  • The CCG has now approved a short term plan to recruit 3 SALT therapists for a 6 month period to meet the needs of those on the waiting list and establish a sustainable position
  • The CCG has progressed a rapid review of the OT service and made recommendations which have been shared with the senior leadership team in the FTs children's service.
  • The CCG has employed a consultant to support work on children's commissioning. They have done a rapid review of the service and have made recommendations.

We asked

To redesign the 5­16 year’s assessment and treatment service for ADHD and ensure it is able to meet need / prevalence and to develop a plan to ensure that those currently waiting for assessment and treatment receive a timely service.

You said

  • Reduce the current waiting list for assessment and treatment for ADHD receive a timely service
  • Streamline the process for ADHD diagnosis and treatment
  • Improve information on ADHD services for children, young people and families

We did

  • Recruited a temporary consultant Paediatrician to provide short term support (6 month post) who will provide extra ADHD clinics.
  • Stockport FT has been providing some additional clinics and waiting times have improved.
  • A new ADHD patient information leaflet has been drafted. This has been shared with parents groups who have commented on it. We aim to finalise the leaflet in January 2020.

We asked

To agree and develop a joint approach to commissioning of therapy services for children and young people aged 0 ­ 25 and to develop a joint commissioning plan to improve access to therapy services, address the deficits in children's therapy services and improve post 16 pathways.

You said

  • Improve access to children’s therapy services – achievement of NHS 18 week referral to treatment standard
  • Improve access to therapy services for young people post 16
  • Improved information for families whilst their children are waiting for assessment and treatment

We did

  • The CCG has approved a short term commissioning plan for improving access and waiting times for Speech and Language Therapy. The likely start date is March or April 2020.
  • The CCG has now approved a short term plan to recruit 3 SALT therapists for a 6 month period to meet the needs of those on the waiting list and establish a sustainable position
  • The CCG has progressed a rapid review of the OT service and made recommendations which have been shared with the senior leadership team in the FTs children's service.
  • The CCG has employed a consultant to support work on children's commissioning. They have done a rapid review of the service and have made recommendations.

We asked

To redesign the 5­16 year’s assessment and treatment service for ADHD and ensure it is able to meet need / prevalence and to develop a plan to ensure that those currently waiting for assessment and treatment receive a timely service.

You said

  • Reduce the current waiting list for assessment and treatment for ADHD receive a timely service
  • Streamline the process for ADHD diagnosis and treatment
  • Improve information on ADHD services for children, young people and families

We did

  • Recruited a temporary consultant Paediatrician to provide short term support (6 month post) who will provide extra ADHD clinics.
  • Stockport FT has been providing some additional clinics and waiting times have improved.
  • A new ADHD patient information leaflet has been drafted. This has been shared with parents groups who have commented on it. We aim to finalise the leaflet in January 2020.

We asked

To improve access to the assessment and diagnosis pathway for ASD for 5 ­ 16 year olds and improve timeliness of assessment and to redesign the 5­16 years ASD assessment and diagnostic pathway in line with the Pennine Care 7 stage model

You said

  • Improve access to assessment and diagnosis pathway for ASD and improve the timeliness of the process
  • Improved information for families whilst their children are waiting for assessment and treatment ­ December 2019

We did

To improve access to the assessment and diagnosis pathway for ASD for 5 ­ 16 year olds and improve timeliness of assessment and to redesign the 5­16 years ASD assessment and diagnostic pathway in line with the Pennine Care 7 stage model

We asked

The CCG asked for views from local people, health and care professionals, VCSE and other local interested parties on proposals to review our current policy on commissioning In Vitro Fertilisation (IVF) services.

You said

Over 400 people responded to the consultation. 

People wanted more information on how changes may impact on other health and care services. 

It was also highlighted that some parts of the consultation process required a review.

We did

The CCG reviewed and reflected on the feedback and reports from local partners and it is clear that we need to stop and thoroughly review the consultation process we have undertaken.

We would like to thank everyone across Stockport who has given their views and assure them that we will work with Healthwatch to agree the information and consultation process going forward, learning the lessons.

We asked

To agree and develop a joint approach to commissioning of therapy services for children and young people aged 0 ­ 25 and to develop a joint commissioning plan to improve access to therapy services, address the deficits in children's therapy services and improve post 16 pathways.

You said

  • Improve access to children’s therapy services – achievement of NHS 18 week referral to treatment standard
  • Improve access to therapy services for young people post 16
  • Improved information for families whilst their children are waiting for assessment and treatment

We did

  • The CCG has approved a short term commissioning plan for improving access and waiting times for Speech and Language Therapy. The likely start date is March or April 2020.
  • The CCG has now approved a short term plan to recruit 3 SALT therapists for a 6 month period to meet the needs of those on the waiting list and establish a sustainable position
  • The CCG has progressed a rapid review of the OT service and made recommendations which have been shared with the senior leadership team in the FTs children's service.
  • The CCG has employed a consultant to support work on children's commissioning. They have done a rapid review of the service and have made recommendations.

We asked

To redesign the 5­16 year’s assessment and treatment service for ADHD and ensure it is able to meet need / prevalence and to develop a plan to ensure that those currently waiting for assessment and treatment receive a timely service.

You said

  • Reduce the current waiting list for assessment and treatment for ADHD receive a timely service
  • Streamline the process for ADHD diagnosis and treatment
  • Improve information on ADHD services for children, young people and families

We did

 

  • Recruited a temporary consultant Paediatrician to provide short term support (6 month post) who will provide extra ADHD clinics.
  • Stockport FT has been providing some additional clinics and waiting times have improved.
  • A new ADHD patient information leaflet has been drafted. This has been shared with parents groups who have commented on it. We aim to finalise the leaflet in January 2020.

We asked

To redesign the 5­16 year’s assessment and treatment service for ADHD and ensure it is able to meet need / prevalence and to develop a plan to ensure that those currently waiting for assessment and treatment receive a timely service.

You said

  • Reduce the current waiting list for assessment and treatment for ADHD receive a timely service
  • Streamline the process for ADHD diagnosis and treatment

Improve information on ADHD services for children, young people and families

We did

  • Recruited a temporary consultant Paediatrician to provide short term support (6 month post) who will provide extra ADHD clinics.
  • Stockport FT has been providing some additional clinics and waiting times have improved.
  • A new ADHD patient information leaflet has been drafted. This has been shared with parents groups who have commented on it. We aim to finalise the leaflet in January 2020.

We asked

To agree and develop a joint approach to commissioning of therapy services for children and young people aged 0 ­ 25 and to develop a joint commissioning plan to improve access to therapy services, address the deficits in children's therapy services and improve post 16 pathways.

You said

  • Improve access to children’s therapy services – achievement of NHS 18 week referral to treatment standard
  • Improve access to therapy services for young people post 16
  • Improved information for families whilst their children are waiting for assessment and treatment

We did

  • The CCG has approved a short term commissioning plan for improving access and waiting times for Speech and Language Therapy. The likely start date is March or April 2020.
  • The CCG has now approved a short term plan to recruit 3 SALT therapists for a 6 month period to meet the needs of those on the waiting list and establish a sustainable position
  • The CCG has progressed a rapid review of the OT service and made recommendations which have been shared with the senior leadership team in the FTs children's service.
  • The CCG has employed a consultant to support work on children's commissioning. They have done a rapid review of the service and have made recommendations.

We asked

To redesign the 5­16 year’s assessment and treatment service for ADHD and ensure it is able to meet need / prevalence and to develop a plan to ensure that those currently waiting for assessment and treatment receive a timely service.

You said

  • Reduce the current waiting list for assessment and treatment for ADHD receive a timely service
  • Streamline the process for ADHD diagnosis and treatment
  • Improve information on ADHD services for children, young people and families

We did

  • Recruited a temporary consultant Paediatrician to provide short term support (6 month post) who will provide extra ADHD clinics.
  • Stockport FT has been providing some additional clinics and waiting times have improved.
  • A new ADHD patient information leaflet has been drafted. This has been shared with parents groups who have commented on it. We aim to finalise the leaflet in January 2020.

We asked

To improve access to the assessment and diagnosis pathway for ASD for 5 ­ 16 year olds and improve timeliness of assessment and to redesign the 5­16 years ASD assessment and diagnostic pathway in line with the Pennine Care 7 stage model

You said

  • Improve access to assessment and diagnosis pathway for ASD and improve the timeliness of the process
  • Improved information for families whilst their children are waiting for assessment and treatment ­ December 2019

We did

To improve access to the assessment and diagnosis pathway for ASD for 5 ­ 16 year olds and improve timeliness of assessment and to redesign the 5­16 years ASD assessment and diagnostic pathway in line with the Pennine Care 7 stage model

We asked

To agree and develop a joint approach to commissioning of therapy services for children and young people aged 0 ­ 25 and to develop a joint commissioning plan to improve access to therapy services, address the deficits in children's therapy services and improve post 16 pathways.

You said

  • Improve access to children’s therapy services – achievement of NHS 18 week referral to treatment standard
  • Improve access to therapy services for young people post 16
  • Improved information for families whilst their children are waiting for assessment and treatment

We did

  • The CCG has approved a short term commissioning plan for improving access and waiting times for Speech and Language Therapy. The likely start date is March or April 2020.
  • The CCG has now approved a short term plan to recruit 3 SALT therapists for a 6 month period to meet the needs of those on the waiting list and establish a sustainable position
  • The CCG has progressed a rapid review of the OT service and made recommendations which have been shared with the senior leadership team in the FTs children's service.
  • The CCG has employed a consultant to support work on children's commissioning. They have done a rapid review of the service and have made recommendations.

We asked

To redesign the 5­16 year’s assessment and treatment service for ADHD and ensure it is able to meet need / prevalence and to develop a plan to ensure that those currently waiting for assessment and treatment receive a timely service.

You said

  • Reduce the current waiting list for assessment and treatment for ADHD receive a timely service
  • Streamline the process for ADHD diagnosis and treatment
  • Improve information on ADHD services for children, young people and families

We did

  • Recruited a temporary consultant Paediatrician to provide short term support (6 month post) who will provide extra ADHD clinics.
  • Stockport FT has been providing some additional clinics and waiting times have improved.
  • A new ADHD patient information leaflet has been drafted. This has been shared with parents groups who have commented on it. We aim to finalise the leaflet in January 2020.

We asked

 

To improve access to the assessment and diagnosis pathway for ASD for 5 ­ 16 year olds and improve timeliness of assessment and to redesign the 5­16 years ASD assessment and diagnostic pathway in line with the Pennine Care 7 stage model

You said

  • Improve access to assessment and diagnosis pathway for ASD and improve the timeliness of the process
  • Improved information for families whilst their children are waiting for assessment and treatment ­ December 2019

We did

To improve access to the assessment and diagnosis pathway for ASD for 5 ­ 16 year olds and improve timeliness of assessment and to redesign the 5­16 years ASD assessment and diagnostic pathway in line with the Pennine Care 7 stage model